Shortly after I was put on bed rest I found a bed rest support group on a high-risk pregnancy website
http://www.keepemcookin.com/ A few weeks ago one of the members posted a topic with the title "I'm not dead, I'm just on the couch." It was funny for a second, and then the reality of that statement hit me...and it hit me hard. There have been times through this process when I have felt very much dead..at least dead to the world.
March and April were pretty good. Friends, family, and neighbors would come visit. They would call and send emails. I felt a lot of support and love. A neighbor was having a bridal shower for her daughter. She offered to have the shower at our house so that I could be a part of it. Unfortunately, it was the same day as
Ryker's 3rd birthday. It was such a sweet and unexpected gesture, but it made me feel included. It made me feel alive. Gone, but definitely not forgotten.
On May 3rd I was admitted into the hospital again and everything changed. I had more visitors during my 3 day hospital stay in March than I did in the 14 days I was in the hospital in May...and I only had 3 non-family visits in March. I had a couple of phone calls, but not very many. I knew that every day I could count on seeing Brian and a visit from my doctor, and talking to my sweet boys. Those were the only guarantees. This is when I began to really struggle emotionally. Not only was I away from my family and home, but I felt very alone. I felt very forgotten.
June came and now school was out. Everyone was busy doing things with their families and busy with life in general. Routines that once were had now been altered. To make it easier on those helping with the boys,
Ryker and
Jaxon would spend the entire day somewhere else. They would leave around 9:30 in the morning and Brian would pick them up on his way home from work, usually around 6. It was during May-June that the lyrics from Celine Dion's All By Myself would run through my head as I cried almost daily."All by myself. Don't wanna be, all by myself anymore".
Every Sunday when Brian comes home from church, or after he's been to a family function, he tells me "So and so said to tell you hi." or "So and so said to tell you they're thinking of you". And it's started to make me think about the so often used phrase "It's the thought that counts", because really, as nice as thoughts are, they certainly don't ease the feeling of loneliness when you're all alone for hours on end day after day after day. I appreciate the thoughts and the sentiments, and I know they have helped, but what's really helped me through is the actual contact...a visit, phone call, or email.
In the beginning I was told by ward leaders that many people had asked what they could do for me. Many offered to watch the boys, so many have brought meals in, some wanted to go grocery shopping, while others offered to help with housework. We felt strongly that the boys should be in comfortable/familiar homes to help with the new chaos in our lives. A few meals come in weekly by so many generous ward members and have helped ease Brian's load. My response to the ward leaders who asked what other's could do for me was usually the same...Please tell them that they can come visit me. While my family and I needed physical help is so many ways, what I needed the most was company.
One ward member often offered very specific help in an area that was really so much easier for Brian to do himself. We appreciated the offer. We just didn't need help with that. What was hard for me was when I heard that this sister said in Relief Society that I wouldn't
let her help me. And I thought, why doesn't she come over and say hello? This was in April and I hadn't seen her once since I had been down. Hadn't I said time and time again that what I needed the most was contact? It felt like an all or nothing deal. If I can't do this one thing that I want to do for you, then I won't do anything at all.
It reminds me of the story of
Naaman who is told to wash in the river Jordan and his leprosy would be healed. At first he is angry at the idea of washing in a filthy river...he wanted a grand experience, but when his servant says "My father, if the prophet had bid thee do some great thing,
wouldest thou not have done it? how much rather then, when he saith to thee, Wash, and be clean?" he obeys, washes in the river Jordan, and is healed.
A couple of weeks ago I was really struggling and crying to Brian about how alone I felt. He was very
sympathetic and during our conversation asked if I had asked anyone to come over or called to talk to one of my friends. At first I was upset over this. I was so tired of asking for help. I didn't want to burden anyone. I didn't want a visit out of pity. I wanted people to visit/call because they wanted to, because they knew I was alone and needed company and not because I asked them to.
The next day, however, I picked up the phone and I made a few phone calls. And when the other person inevitably said "Sorry I haven't been by to see you more" I didn't give my usual "It's okay, life is busy" response. Instead I told them that I would love to see them. I encouraged contact. I didn't brush it off like I was okay without a visit, that I was doing fine, and I didn't want to burden them. I needed to be the one that opened up and allowed myself to be vulnerable. I wasn't okay. I was lonely and I needed to see people. How can any of us expect help from others when we don't tell them what we need?
To me it feels like the novelty of our situation has worn off. So many that were eager to help/visit in the beginning haven't been seen or heard from for a very, very long time. And while it's just another update and we're in the same position as we were in March, what I don't think many realize is that I am still here and all those things I needed in the beginning I still needed in June.
I've learned a lot during these past 4 months. Kind gestures make a greater impact than kind thoughts. Most people, myself included, will not usually act on an open invitation to "Call if you need anything"....even though I have been forced to do just that on multiple occasions. I didn't want to ask anyone to vacuum for me, but a few times when a friend would say "Can I vacuum for you?" I gladly accepted the offer. No one likes feeling like a burden, and it's hard for almost everyone to ask for help. I appreciated those that saw a need and took care of it.
I remember years ago my mom telling me that sometimes we are blessed with less than pleasant experiences to help us understand how NOT to treat others. Sometimes feeling left out will help us be more aware of including others.
I have a deeper love and appreciation for those friends who have been consistent, who've acted on the thoughts, and who were here for me long before I was on bed rest, who've been my support during these past 4 months, and who I know will still be constant long after I've returned to normal life.
My mom has been here almost every single morning getting us breakfast, doing a little housework, getting the boys ready, taking care of me and keeping me company. She calls to check up on me throughout the day. She takes me to my doctor appointments. She watches the boys multiple times a week. She doesn't wait for me to ask for help, she just does it. We never grow out of needing a mom, and I have needed and depended on her so much. I don't know who is going to miss having her come over every morning more ...me, the boys, or her!
I am so thankful for those that have made me feel alive and included. Those that not only bring me lunch, but stay to visit and eat with me. For family being willing to gather at our house so I can be included.
We all have trials, I know I've had my share, but this is my first real physical trial. In prior times of difficulty there was usually a way to divert my attention from my situation. Going for a drive through the canyon, visiting family or friends, taking a walk, being busy with anything at all helps keep the mind off of the trial, even for just a moment... it's an escape. My escape is often inside my mind...and we all know how scary that can be!!
The doc that takes part in the bed rest forum recently wrote an article in the Huffington Post about bed rest he said:
"My patient, six months pregnant, came to see me for an ultrasound. I diagnosed her with shortening of her cervix, which put her at significant risk of preterm delivery. Three months before her due date, with her fetus' chance of survival outside her womb dismal, this was reason for concern.
I laid out the risks, I prescribed progesterone and I recommended bed rest. "Do you mean I have to stay in bed all day?" this active mother of a two-year-old asked incredulously?
I explained bed rest: reclining on a couch or in bed except for trips to the bathroom and a brief daily shower.
"Can I lift my son?"
"It's not recommended," I said, wincing as I gave her more bad news.
"Can I prepare a meal?"
"It would be better if your husband did it," I explained.
"What about my job?" she asked with eyes wide. She managed a garden store and spent a lot of time walking and lifting.
"Can you take a leave of absence?"
And then my patient left -- her life turned upside down -- with a little appointment card clutched in her hand reminding her to come back in two weeks so that I could measure her cervix again.
My patient left with the facts, a prescription and instructions for bed rest that we hoped might prolong her pregnancy. What she didn't receive was advice about how to handle the fear and anxiety associated with the news that any day she could deliver a premature newborn who might have difficulty breathing, neurologic impairment or blindness. And she didn't get tips on how to handle the loneliness, isolation and guilt that accompany the transition from active employee, parent and spouse to long-term couch potato." http://www.huffingtonpost.com/adam-wolfberg-md/bed-rest-pregnancy_b_870629.html
The last paragraph sums it all up. Fear. Anxiety. Loneliness. Isolation. Guilt.
It's been a long journey. Longer when I think about all that has happened while I've been in bed. March. April. May. June. Brian's birthday, my birthday, Ryker's birthday. Easter, Mother's Day, Memorial Day, Father's Day. Spring break. End of school. Spring soccer. Baseball.
And yet, knowing what I know now, even with as hard as it's been, even with knowing how lonely, isolated, and forgotten I have felt, I would do it again. I have been able to walk a mile in many shoes. Lonely shoes, housebound shoes, shoes filled by people who are afraid of the unknown.
Knowing what I know now, I pray that I won't forget this experience. I want this trial, like all the others in my life, to shape me into being who I can become. I want it to change how I treat others, that I can be more aware and sympathetic to their needs. I hope I can say in the end that I have been changed for the better, that I have been changed for good.